Thank you all - I appreciate your friendship. I offer the following update:
Dear Family & Friends,
As many of you know, my grandson Landon John D’Agostino was born prematurely this past weekend (2/26/2011) to my daughter Michelle and son in-law Mike. What a wonderful feeling and blessing!
Michelle is doing great, but Landon has suffered a couple of issues during his short time here including being a bit early & a difficult delivery which definitely caused us some immediate concern. He was in rough shape and immediately removed from delivery and admitted to the NICU. Every mother’s nightmare.
Yesterday morning we received great news that all issues associated with his birth were looking good and that they were going to prepare him for going home by feeding him with a tube. That’s when they discovered he has a condition that affects about 1 in 4000, his upper esophagus is not connected to his lower esophagus, which is in turn connected to his trachea. This is something that happened very early in the pregnancy and had nothing to do with being premature or stressed during delivery. This would have needed to be dealt with no matter.
He was immediately transferred from our community hospital to the Floating Hospital for Children at Tufts Medical Center in Boston. This is a top notch facility that specializes in pediatric care and surgery. We are blessed to be born in this country and lucky to live in the Boston Area, home to some of the best medical facilities in the country.
Today he is scheduled for corrective surgery for this condition (this afternoon) and the prognosis is very good, but the question remains whether the correction is possible in a one operation. Landon will not be able to go home until the repair is verified good and he is eating well (since he has never started yet).
Additionally and as you may imagine, where there is one issue there may be others and in fact we just found out that there is. New testing has revealed a hole in his heart between the left & right ventricle that as the days progress will allow too much blood to enter the lungs. Based on the hole size and location this is not a condition that will heal itself and surgery will be needed to patch the hole for a permanent repair. The prognosis for this surgery is also very good with no long term ramifications in life. He will be able to do anything and everything.
So while we suffer through each new round of bad news, we are lucky to get corresponding good news that these conditions are treatable, success rates are high and there are no lifelong issues to deal with. When we get these issues behind us, that is where they will be, behind him!
I just came from seeing him and he is prepped and ready for surgery. He is just waiting for his turn (which we were just told would be 4pm EST). He looks fantastic and his stats are great. He could be no readier especially after Grampy, Mommy & Daddy said a prayer with him and over him! We have faith that our God will heal and deliver Landon from these issues and we ask for your continued thoughts and prayers for his surgeons, that this first condition will be a one surgery correction and that he has a speedy recovery in preparation of his heart surgery. There is a long road ahead but Landon has the love of his parents and his family surrounding him.
As you can imagine it is difficult to remember who we spoke to or when or what you know. Please feel free to pass this on to those you know would appreciate an update. Thanks for your love and friendship!